A man whose striking appearance includes tattooed eyeballs has spoken openly about the painful assumptions and abuse he faces from strangers who believe his body modifications are responsible for his blindness.
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Identified as Juliusz, the man said people frequently make hurtful comments about his appearance and, in some cases, accuse him of causing his own blindness.
Juliusz has undergone extensive body modifications, including tongue splitting, head implants and numerous tattoos. However, he says his blindness has nothing to do with those procedures.
According to his account, he was diagnosed with Neurofibromatosis Type 1 (NF1), a genetic condition that can cause tumours to develop along nerves, including the optic nerves responsible for vision.
The condition began affecting him during childhood. He said problems with his eyesight were noticeable from a young age, with his left eye becoming essentially blind during childhood before the vision in his right eye gradually deteriorated over the years.
He explained that the loss of his sight was caused by complications associated with NF1, rather than the tattoos on his eyes.
One of the claims he finds most upsetting is the suggestion that his eye tattoos caused his blindness.
Lamenting the misconception to needtoknow, he said:
“The cruellest false claim of all is the recurring accusation that my eye tattoos caused my blindness,”
“This is medically impossible, and it is deeply distressing to hear it repeated.
“My blindness was caused by optic atrophy from optic gliomas in NF1, documented by multiple eye specialists, including at the University Hospital Düsseldorf, with medical certificates from October 2025 and January 2026 confirming the cause.
“The tattoos were performed years after I had already gone blind.
“The timeline alone makes it impossible.
“The medicine makes it impossible and yet the myth persists, and it wounds.”
Juliusz said his vision loss was not sudden. Instead, it developed over a long period, beginning in childhood and progressing gradually.
He added:
“The decline began in childhood. There were vision problems noticeable from a very young age.
“My left eye was essentially blind from early childhood.
“My right eye then deteriorated gradually over many years.